Siblings’ vital role in lives of people with disabilities

In Spain, José Ramón Alonso and Isabel Martínez shared their experiences as siblings of people with disabilities, highlighting the often-overlooked needs of family members who provide care.

Isabel recalled growing up with her brother Jaime, who had autism, describing three stages of her relationship with him. Initially, she saw his disability as normal, then experienced embarrassment during adolescence, and finally reached a point of acceptance and pride, even creating “Algo de Jaime” to showcase his art.

José Ramón, a neuroscientist, emphasized that siblings of people with disabilities are key to family well-being and often have unmet needs. He explained that a successful family dynamic benefits everyone, including the person with a disability and their siblings. He also noted that parents of children with disabilities often rely on their other children for support, creating a delicate balance within the family. Isabel described how she adapted to Jaime’s needs, prioritizing his inclusion and happiness.

She felt that caring for Jaime wasn’t a burden but a natural part of her life, and she even considered living near his future care facility. Both Isabel and José Ramón believe that siblings deserve access to the same support services as the person with a disability, such as therapy, and dedicated time with their parents.

They also pointed to a growing community of siblings who connect and support each other after the loss of a loved one with a disability.